Well I came back from my Neurosurgeon appointment today with a date for my surgery. May 19th should be the big day! I was hoping to have the surgery a bit sooner (like the first week in May) but I guess this is good because it gives me more time to get things together. I won't have to rush so much when it comes to settling my affairs. Like I said before, I'm not a patient person but I'm guessing this is the plan god has set for me so I will go along with it!! It also works better for my Dad who will be helping to take care of me after the surgery. It's funny....when we went in today to see the doctor I was expecting to be extremely nervous for a date and time. However, I feel better that we are finally moving forward with this! It also sounds like the recovery for my surgery should not be very long. It should only be just a couple of weeks, because this is a minimally invasive kind of surgery (endoscoptic- through the nose) the recovery time is much quicker. Of course everything will all depend on how well the surgery goes!
I have to add that I really like the fact that ALL of my doctors are talking to each other! I can't state that enough!! Doctors need to talk to each other!! They can discuss whatever it is that they want to discuss as long as it correlates to my being healthier and rid of this tiny yet enormous problem!! I did not feel like they talked much to each other the last time I went through this (thus the calling off of my surgery the minute I walked through the surgery doors 2 years ago). So when I have seen each of my 3 doctors I stated to them that they needed to talk! Communication is the key to success!! Plus with everything that happened last time I do feel a bit better that they are communicating and are more accommodating to my needs. They know my situation and my progress in the adoption process. My Neurosurgeon stated today that he himself was adopted. So now he needs to really focus on getting rid of this little problem not just for me but for my future son! I am feeling good about this which I think is for the best. If I had any reservations I would be putting this off a little bit longer and I don't want to do that! Life is moving much too fast and I don't like that I have to sit and wait for life as it passes me by. So now that I have about a month until my surgery I need to get my house in order. I also need to call my Home Study guy to set a time to meet and hopefully get in one more visitation with the boy I am hoping to adopt! Just because I'm going to be having brain surgery does not mean I am going to stop with everything that is going on in my life. I plan on having an AWESOME summer with my future kid and know that I will be on the path to a much healthier life. As Pete the Cat says...."It's all Good!" Now to start making a list of things that need to be completed before I have surgery.
My journey through the struggles and triumph's in reaching a bucket list goal while wearing a sparkling tiara!!
Monday, April 20, 2015
Sunday, April 19, 2015
OLD POST from 2014- How time changes in the most dramatic way!
Well it is now August 2014 and it has been well over a year since my journey with Cushing's Disease has begun. Many people have asked how I have been feeling and I am very appreciative of all those who care. I am doing very well!! My recovery has been extremely long but I am doing much better and able to do most of what I was doing before my Cortisone breakdown occurred. I still do not have any answers and no one can tell me (who/what/where/when/or why) this has all happened but I have learned that I am very much a human with human aches and pains! I wish that I could say that I was a fighter through all of this but I'm not really sure what I'm fighting against. I have truly learned what the word appreciate and thankful mean. I appreciate those around me who have helped me out in so many ways. Even ways in which you think are not helpful can be more helpful than you realize yourself. (Does that make sense?) I love my job and all the kiddos I work with but it is very hard doing what I do when you are not yourself. It has only been a week since the school year has started and I have had several people mention that I am back to my bubbly old self. Well when your now able to run up and down the stairs (one at a time) without pain in your feet or legs, it makes a huge difference in your attitude and especially your strength. The one symptom that has taken the longest and I'm still working a little bit more on is the regaining of my strength. It amazes me how, when a person is in pain (either physical or emotional), it can wipe a person out!
Saturday, April 18, 2015
What's to come!?!
So as of right now I will be having surgery to remove my pituitary adenoma. I have seen the ENT and the Endocrinologist and both have agreed that since my adenoma (aka tumor) has grown it needs to be removed. The positive thing about all of this happening now is that I am considerably healthier than I was when all of this adenoma stuff was detected and started happening. Which makes me feel slightly better with having the surgery. When I was going through this the first time I was a hot mess and couldn't even get off of the couch because I was in such pain. Now (although I get very tired easily) I am able to do so much more and snap back from aches and pains much easier. As with my diagnosis of Cushings.....my Endocrinologist says that I do NOT have Cushings. No one is able to explain what happened and why it happened? As it has been stated....I am an oddity! But those who know me knew that :) So I guess that is another positive to all of this mayhem. Next step is to see the Neurosurgeon and hopefully set a date for surgery. I've always been fascinated by the brain and how it works. Never knew mine would be such a controversy!!
Monday, April 13, 2015
The obstacles keep on coming!
It's funny how life keeps throwing obstacles at you! The obstacles keep on coming but faith is helping me through them (that and my awesome friends!). It's been over a year since I last put up a post on this blog, but to be fair nothing much has happened in my life. Well life has decided to change that.... Right now I am currently in the process of adopting a little boy. I will get more into detail on that story in the future but as of right now my pituitary tumor has decided to re-emerge into my life and try to put a damper on things. The clincher is that while I have been going through the adoption process for 8 months now, my tumor has decided to grow and cause yet another road block into my future. What does that mean? More than likely surgery. So now I have this young boy to think about and god has given me this obstacle of going to have surgery. Not just any old surgery but BRAIN surgery. Not that anybody wants to have surgery at all or even have some kind of tumor, but why couldn't I have had a tumor somewhere further away from my brain? At times I do feel defeated and think...Everything that I try to do, something has to happen and I have to put my hopes and dreams aside. Honestly, I want to throw a temper tantrum like a child but what good would that do? It doesn't change anything! My biggest fear through all of this is the possibility of not being able to adopt. I never thought that I would get the chance to be a mom and now I have the opportunity. I'm not in the adoption process to find a child to adopt. I've already found him! It's just getting everything legalized through paperwork. I have to go through all the red tape and jump through hoops to be able to get the opportunity to visit with him. I understand the process, especially since he is a foster child, but it has been an agonizing wait! Now this!! I keep telling myself this is probably the best time for this to occur. I can get this surgery done and over with before he is able to come and live with me. Home inspection (CHECK), Emergency contacts (CHECK), Home study interviews (CHECK), Brain tumor removed (CHECK). I totally believe that god has a purpose and plan for my life. I just wish he would let me in on the secret as to what that plan would be. So as of right now I have to wait for all of my doctors appointments to see what and when things are going to happen. If you know me, you know that I am not a patient person. I hate sitting and waiting for things to happen! Life happens and it happens quickly. When you wait there are many things that you may be missing! Luckily I have many people in my life who remind me of the importance of waiting and being patient. I know they are right, but it doesn't help when it comes to my mind and my heart! So as my journey continues, I hope that god grants me the patience that I need and the heart to continue to believe that.....everything happens for a reason!
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