Wednesday, August 21, 2013

UPDATE....

     Well I got my second opinion and the results came back in the average range again. Which means I will not be having surgery. I'm not sure if that means I do not have cushings or I did have cushings but don't any more. No one seems to be able to give me an answer to that one. I had every single symptom of cushings you can think of but now they are gone (or at least getting better- healing!) What they did say is that we need to keep an eye on the pituitary adenoma and I will have to do testing every 3-6 months. What fun!! I am now in search of a good Rheumatologist because I still have osteoporosis and have pain in my feet. Maybe they can give me some kind of answers?!? Who knows?  I have no clue!! I am getting better and find that I am able to do more things than I was before. However, I continue to get extremely tired and weak when I push myself. I also still walk funny at times and I get sore when I sit up and down. I also continue to be EXTREMELY slow at times which continues to drive me crazy (especially now that school has started back up again).  Speaking of school starting,  I'm back to sitting my butt down on the couch at night and not moving (because I can't)! It amazes me how much crap you need to do to organize a new classroom. I have needed to figure out how I'm going to utilize the space I have to maximize as much teaching for five different grade levels. I do have to say that I work with some extremely AWESOME people who have helped me more than they realize. When I first walked into my classroom I wanted to cry because I knew there was going to be a lot of lifting and moving things around. Something I was able to do a year ago but struggle with today. Having many people come into my room (colleagues whom do not even work in my building) came to help me out! Again, another positive of Facebook. I put out a post about needing help and people were there to help without question. As I've spoken with many people, there are many lessons to be learned from going through all of this! One lesson I have learned is the power of helping others out. People may not think they are doing much to help someone out but it may be more than you realize. Even the little things can become a HUGE deal when you need help!
     So as for now my journey continues.....I still want to run but I'm working on walking without pain first. I have a lot to learn about what I need to do for my osteoporosis and how to get back to being 100% healthy. This time next year I want to be able to say I'm pain free and doing extremely well. Everything takes time!

Saturday, August 10, 2013

The Waiting Game.....

Well I am now back home from taking all the tests and samples for the doctors. I turned in my last saliva sample test yesterday. Right now its the waiting game. I don't like the waiting game....actually I HATE the waiting game! I can play the quiet game, a matching game, or some type of board game but not the waiting game. I feel like I've been waiting for years. I wish I had a magic wand to just go "POOF" here is your answer....your done! BUT....I  have to wait a while to see what  the Endocrinologist says about my test results.  Trying not to be hopeful and trying not to be let down. I did get results back from a bunch of tests that were taken. I have the MyChart app were I can sign on and see test results, messages, appointment times, and so forth. From what I can read from the test results they are coming back in the normal range. I do have a couple results with exclamation points next to them indicating that the results are out of the standard range but I'm not sure exactly what that means. Everything is still up in the air. I'm trying to be hopeful but with school approaching quickly its hard to keep my head up. I am very nervous as to what this school year will bring. I am not 100% back to normal (whatever normal is for me anymore) and that makes me nervous. Am I going to struggle physically like I did last year? When I do something, I like to put forth 150% effort into what I do but I still move rather slow and can't get up and down without some pain. I don't know if I am recovering slowly or if my body is in limbo from the Cushings. My fear is that all my tests results will show that I'm fine but once the true stress of teaching begins the Cushings symptoms will come back with avengence! I try to keep up with reading everything I can about Cushing's but I get no answers there. Only the same old stuff that I would think describes me as having Cushing's. However, I guess anyone can diagnosis themselves off the internet and still have it not be true. I just want to feel better and do the things I use to be able to do! Like sitting on the floor with my students and not worry about how I'm gonna get up! Or run around with my students without the fear of my feet hurting!! I'm tired of feeling lazy and want to regain the energy I had a year ago when I was running. When I was running it was so easy for me to get up in the morning. I was able to go up and down stairs quickly. I didn't yawn all day and had great days full of energy!! Where did that go and why is it so hard to get back? Well...I'm trying to hang in there and hoping to hear results sometime next week. For now I've "gotta keep my head up...oh oh..so I can let me hair down...eh eh...I know it's hard, know it's hard to remember sometimes, but I gotta keep my head up...oh oh...SING IT!!